disability

warm tones highlighting Mikelle surrounded by friends and family. A second image shows Mikelle and her brother as children.

Community. It is all about relationships.

Forty-Two Candles and a Community of Friends June has been one of those months that remind Mikelle and me how quickly life moves and how important it is to pause long enough to appreciate it. In just a few days, Mikelle will celebrate another birthday. Forty-three years ago, I couldn’t have imagined all the people, […]

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Pink graphic with old fashion gold colored alarm clock in the center. Text says Nurturing a loving relationship with time.

Nuturing a Loving Relationship with Time

Most of us experience a conflicting relationship with time. Time continues to be both the adversary and the giver of great gifts. As the world speeds up, our relationship with time becomes more conflicted–especially as we grow older, especially if we are caregivers and people who have lived experience with disability.  Many of us operated

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Our Everything, Everywhere All At Once!

Routine Life Most families have a routine. We have a daily set of rituals and activities that help us wake up, move around the house and help us run around our communities, and chat with each other over coffee. Yet, we all know that when the dishwasher does work, or the car won’t start, it

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Are We Doomed?

Part Two   Exhaustion Sets In In last month’s blog post, Mikelle and I lamented that we are still in the middle of a staffing crisis ourselves. Since then, I have met with other parents experiencing some version of this crisis in their own families. Compounding our situation are life challenges like parental surgeries and

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