Self-Determination

Pink graphic with old fashion gold colored alarm clock in the center. Text says Nurturing a loving relationship with time.

Nuturing a Loving Relationship with Time

Most of us experience a conflicting relationship with time. Time continues to be both the adversary and the giver of great gifts. As the world speeds up, our relationship with time becomes more conflicted–especially as we grow older, especially if we are caregivers and people who have lived experience with disability.  Many of us operated […]

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a small peninsula with old Mediterranean buildings overlooking an azure colored sea

The No New Year’s Resolution Revolution: Embracing Personal Growth Without Pressure

When the New Year bell rang, I decided the Christmas tree had to come down. For Mikelle, it was a bittersweet moment. Her month-long party had come to an end. She wore her disappointment stoically as she watched me take down the garland, the twinkling lights she loved, and finally, the treasured ornaments that held

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Mikelle is in her wheelchair bundled up with a gray blanket at night with the snow falling around her.

Jingle All the Way: Celebrating the Magic of Christmas in Our Special Community

FLike jingle bells, laughter echoes through this holiday season as we celebrate the magic of Christmas. The Magic of Christmas This year, we decided to mix up the holiday season slightly. For instance, last month, we had a festive “wheelchair party” celebrating Mikelle’s new red wheelchair. The evening was packed with celebration, wine, and festivities,

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Will the Pioneer Generation become the Generation in Crisis?

Is the aging caregiver crisis just around the corner? Her passing set in motion a cascade of decisions that triggered deep thought about my passing and preparation for when, as one of my fellow special needs parents says, “We fall off our perch.” The Problem. In the U.S. today, there are nearly one million households

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A Must Have Tool for Transition Planning

It is late spring. The flowers are bursting through moist soil with daffodils and tulips, and the sweet smell of apple blossoms lingers. All across America, in high school classrooms everywhere, transition plans are in progress for teenagers with disabilities who have an IEP (Individual Education Plan). These transition plans are designed to prepare future

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Our Everything, Everywhere All At Once!

Routine Life Most families have a routine. We have a daily set of rituals and activities that help us wake up, move around the house and help us run around our communities, and chat with each other over coffee. Yet, we all know that when the dishwasher does work, or the car won’t start, it

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