Special Needs Parenting

Pink graphic with old fashion gold colored alarm clock in the center. Text says Nurturing a loving relationship with time.

Nuturing a Loving Relationship with Time

Most of us experience a conflicting relationship with time. Time continues to be both the adversary and the giver of great gifts. As the world speeds up, our relationship with time becomes more conflicted–especially as we grow older, especially if we are caregivers and people who have lived experience with disability.  Many of us operated […]

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The No New Year’s Resolution Revolution: Embracing Personal Growth Without Pressure

When the New Year bell rang, I decided the Christmas tree had to come down. For Mikelle, it was a bittersweet moment. Her month-long party had come to an end. She wore her disappointment stoically as she watched me take down the garland, the twinkling lights she loved, and finally, the treasured ornaments that held

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Will the Pioneer Generation become the Generation in Crisis?

Is the aging caregiver crisis just around the corner? Her passing set in motion a cascade of decisions that triggered deep thought about my passing and preparation for when, as one of my fellow special needs parents says, “We fall off our perch.” The Problem. In the U.S. today, there are nearly one million households

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Our Everything, Everywhere All At Once!

Routine Life Most families have a routine. We have a daily set of rituals and activities that help us wake up, move around the house and help us run around our communities, and chat with each other over coffee. Yet, we all know that when the dishwasher does work, or the car won’t start, it

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Let’s Celebrate!

One Christmas in Color, two-holiday parties, three great presents, four fun team members, and five golden smiles made this holiday season bright. Strung together like a strand of lights on the Christmas tree, this season’s events were brilliant and beautiful. Our hearts are full of love for our friends and family. Perhaps our appreciation is

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Vote Like Your Life Depends on It! Cause it does.

Today, November offers up a beautiful fall day. The temperature hovers at a lovely sixty-five degrees. Soft, faded pink hydrangeas bounce on a gentle breeze. I am sitting in the sun at a local coffee shop in the garden of falling leaves. This moment feels like the warm before the storm. Our first measurable snowfall

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